Chad’s accident happened almost 8yrs ago. So much of your story is like ours. I still care for him at home. He hasn’t had any type of therapy other than what little I do with him(basic stretching some standing) I just feel even more helpless than I did after the accident. Im afraid ther so much more that I could be doing for him. Just feel so overwhelmed and guilty. If there is any type of information…anything at all I would love for you to contact me via email please. Im so happy for your son and your family that he has made such progress. God is good!
Joel, your story as well as Bart’s story of earning the courageous badge of honor of traumatic brain injury and how he as well as your family has fought so hard to put the pieces of Bart’s life back together warm my heart & give me hope!! My hope that not anyone else has to experience what Bart as well as you and your family have gone through to seek advocacy in brain injury!!! However, I am happy to say that I know someone first hand that when they were called to fight this invisible battle of brain injury that you have and still do everyday!! I am going on my three year marker since my car accident that almost took my life 9-14-11, and I can safely say this…. Having a brain injury myself that completely disabled me at the age of 32 has given me a new awareness of advocacy that I never thought a second about prior to my car accident!! I have always been an advocate one way or another from my childhood, teen years, young adult career paths and well just life in general!!! I am hoping to keep on moving forward, I do take one day at a time- Hell who I am seriously kidding- I take every thing moment to moment now and there are so many out there that do not acknowledge or recognize just what it takes for a person who is brain injured to process complicated scenarios anymore, because to someone who is brain injured everything is complicated!! Thus why I thank you, Bart, and your family from the bottom of my heart for shedding light upon something that goes so heavily ignored, when in reality it effects so many of us!!!
Look into myofascial release and different games to help increase memory. No matter how severely brain damaged I beleive we CAN get better! We may not be the same but we can improve from where we are starting over.
Let’s forget about the hardships of the advocates and concentrate on the proper treatments for the patient. Sometimes the advocate is the biggest stumbling block for the patient received the proper treatment. The most important treatment a patient can receive is one “that will make him fully aware as to the extent of his injuries”. If the advocate is not aware of this treatment…WILL IT MEAN THAT THE PATIENT will never receive it?…It is the advocates position to direct the patient. COGNITIVE REMEDIAITiON is designed to begin post neuropsychological testing. It is designed to put those symptoms picked out by the testing on a poster and then for classes to begin, with other members with head injuries, where the patient will read those symptoms each class and provide an example of how he dealt with that symptom. The results of this treatments is that the patient will be directed to read his symptoms continuously…(programming them into his memory)…and working on his symptoms will bring OTHER symptoms OUT…which will also be read and worked on. It takes a few years to finally get the whole picture together. When the patient is ready to leave cognitive remediation he will have added approximately 1/3 more symptoms than were on the chart before. This will be his true “RESULTS OF HIS INJURY”. Post my cognitive remediation treatments in the Rusk Institute I kept an index card detailing my full injury. I was given according to them…”full neuropsychological testing” somewhere in Manhattan where the results according to the doctors there were…” a short term memory loss”. I showed him my index card that read…”long term memory loss, short term memory loss, focusing what is said,memory dejavu, time and place disorientation, impaired insight and judgement, distractibility, emotional gaiting, hemiparesis right hand side”…Being and advocate will mean educating yourselves at the proper procedures needed…
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